2020 Sweat it Out 5k
We are thrilled to host the sixth annual Sweat It Out - Virtual 5K!
Hypohydriotic Ectodermal Dysplasia is a rare inherited genetic disorder that affect 1 in 17,000 individuals worldwide. It is a multisystem disorder that typically affects the hair, teeth, nails, sweat glands, and skin. The primary feature of HED is lack of or diminished sweating: hypohydrosis. The National Foundation of Ectodermal Dysplasia (NFED) is a nonprofit organization that helps and supports families affected by HED. They have been so helpful to our family since Nicholas’ diagnosis. So many questions and concerns; NFED was there for us, supporting us through the initial phase of being diagnosed. Their mission is to empower and connect people touched by HED through education, research, and support. Their vision is to be a recognized leader among health related nonprofit organizations and will be known for providing comprehensive services with loving care for individuals affected by HED. NFED will help individuals and families benefit from early diagnosis care, and will continue to be there throughout their lives. Ultimately, a cure will be found and NFED will be the force behind this cure!
Our race has two goals: Raising awareness and raising funds. To know about and to understand HED will empower those affected.
They will have a voice…your voice. The funds raised will allow the NFED to continue their amazing work and help them to fulfill their mission.
How will you, the sponsor, benefit?
Your company logo will be posted on all race materials. To start, our amazing t-shirts, designed by Nick, will list all sponsors with their logos on the back! We will have daily posts to Facebook and our website thanking our sponsors. The NFED will also have a link to our website. This is an amazing opportunity to make a big impact on those affected with HED. Please consider sponsoring Nicholas and Sweat It Out 2020.
Hypohydriotic Ectodermal Dysplasia is a rare inherited genetic disorder that affect 1 in 17,000 individuals worldwide. It is a multisystem disorder that typically affects the hair, teeth, nails, sweat glands, and skin. The primary feature of HED is lack of or diminished sweating: hypohydrosis. The National Foundation of Ectodermal Dysplasia (NFED) is a nonprofit organization that helps and supports families affected by HED. They have been so helpful to our family since Nicholas’ diagnosis. So many questions and concerns; NFED was there for us, supporting us through the initial phase of being diagnosed. Their mission is to empower and connect people touched by HED through education, research, and support. Their vision is to be a recognized leader among health related nonprofit organizations and will be known for providing comprehensive services with loving care for individuals affected by HED. NFED will help individuals and families benefit from early diagnosis care, and will continue to be there throughout their lives. Ultimately, a cure will be found and NFED will be the force behind this cure!
Our race has two goals: Raising awareness and raising funds. To know about and to understand HED will empower those affected.
They will have a voice…your voice. The funds raised will allow the NFED to continue their amazing work and help them to fulfill their mission.
How will you, the sponsor, benefit?
Your company logo will be posted on all race materials. To start, our amazing t-shirts, designed by Nick, will list all sponsors with their logos on the back! We will have daily posts to Facebook and our website thanking our sponsors. The NFED will also have a link to our website. This is an amazing opportunity to make a big impact on those affected with HED. Please consider sponsoring Nicholas and Sweat It Out 2020.
Another way to get involved is to be an “in kind” sponsor! We are in need of the following products and services and anything that is donated means we can give more money to NFED!
